Good Changes

Miss M, I’m going to do something for you.  It’s for you, and you alone – don’t ever forget.  It’s probably going to take even more of my limited time.  But it’s worth it, my sweet girl.

We’re starting to think about a non-profit.  I’ve “met” a couple of KFS supporters and three of us are getting linked up to explore this idea, this promise.  What if we could improve treatment, identify genetic causes, identify experts in clinical practice, initiate new research studies?  What if we are strong enough to do this – we are few, but we are mighty.  I hope.


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